Local Assembly Member Paul Davies recently met with Grace Paget, the Public Affairs Officer for the Cystic Fibrosis Trust to discuss the work of the organisation across Wales and to learn more about the impact that living with cystic fibrosis has on families across the country.
Mr Davies commented, “It was a pleasure to meet with the Cystic Fibrosis Trust and to hear more about their work across Wales. Cystic Fibrosis affects more than 10,000 people in the UK and so it’s crucial that we recognise some of the challenges that people living with cystic fibrosis face on a day to day basis. It was also great to hear more about the Access to Medicines campaign and the importance of drugs like Orkambi in improving lung health and reducing hospitalisations. Their campaign is an important one and I look forward to continuing to work with the Trust to see these drugs being made more widely available to people living with cystic fibrosis in Wales.”
